RARE DISEASES - HEALTHCARE TODAY

LIVING WITH RARE DISEASE: QUALITY OF LIFE AND CARE

Healthcaretoday, Malaysia Healthcare, Rare Diseases, Medicine Access, Public Private Partnership, Healthcare Equity, Rare Disease Treatment, Sustainable Healthcare, Rare Disease Awareness, Orphan drugs, Healthcare Financing,

OP-ED: 40% of rare disease patients untreated amid lack of innovative access models

Can new funding and public-private partnerships transform rare disease access in Malaysia?

Healthcaretoday, Cornelia De Lange Syndrome, Rare diseases, CDLS, Special needs, Genetic disorder, Special needs parenting, Rare disease awareness, Pediatric health, Genetic Syndrome, Disability awareness, Special needs child,

Rare genetic disorder leaves child struggling

Discovering hope in the face of adversity: A mother's journey with Cornelia De Lange Syndrome

Healthcaretoday, Pompe disease, genetic disorder, Nexviazyme, IOPD, LOPD, muscle function, rare disease, SANOFI,

New ERT Nexviazyme approved for treatment of Pompe disease

Improving lung function, walking distance, and muscle strength

Healthcaretoday, rare disease, Pompe disease, rare diseases, genetic disorder, floppy baby syndrome, frequent falls, genetic testing, genomic testing, Lysosomal storage disorders, Enzyme Replacement Therapy (ERT),

Pompe disease: Genetic disorder characterized by acid alpha-glucosidase deficiency

The challenge of recognition

BREAKING BARRIERS: ATHLETES WITH RARE DISEASES

Healthcaretoday, Noor Askuzaimey, Boccia champion, Paralympic Hero, Rare Genetic Disorder, AMC Awareness, Arthrogryposis, Malaysian Athlete, Disability sports, Boccia, Paralympics 2024, Overcoming adversity, Disability Inclusion, ASEAN Para Games, Asian Para Games, Ability Not Disability,

Noor Askuzaimey's journey from rare genetic disorder to paralympic glory

How a Malaysian champion turned arthrogryposis into triumph on the boccia court

FINDING SUPPORT AND COMMUNITY

Healthcaretoday, Tender Touch Pediatric Rehab, Celebrating abilities, Rare disease, Pediatric Rehab, Rare disease awareness, Community support, Lotuss Malaysia, Kimrya International, Childrens Health, Disability inclusion, Special needs parenting,

Celebrating extraordinary journeys: Tender Touch gala honors 22 families facing rare diseases

Lotuss Malaysia reaffirms commitment with RM55,920 donation to Tender Touch Pediatric Rehab

Sharfiza Abdul Aziz brings hope through pediatric physiotherapy

Fundraising gala aims to provide 400 free therapy sessions for 40 underprivileged children

Healthcaretoday, Prader-Willi Syndrome, PWS, hyperphagia, genetic disorder, chronic overeating, obesity, Prader-Willi Syndrome Association Malaysia, rare disease,

Shining light on Prader-Willi syndrome

Taylor’s College join forces with PWSA Malaysia to raise awareness, funds, and empathy for families facing Prader-Willi syndrome

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